Change in plans…

Things in life don’t always go as planned. Things in my life never go as planned. I’ve come to expect it and deal with it well. Lol- well maybe not so well right now…

I had an ultrasound of my lymph nodes earlier this week to check the progress we were making with chemo, and to help set a surgical date for AFTER Baby K’s arrival. I met with my surgical oncologist after my test and the news was not really what I was expecting. Insert something funny here … I’m not feeling too funny right now so you will have to come up with your own humor.

While my tumors haven’t grown, they haven’t shrunk either. They are the same size as they were 13 weeks ago- not good. They also found another tumor that was “probably” there before but no one is really sure or at least hasn’t said one way or another to me.

The chemo isn’t working…. what’s next? Well, if I wasn’t pregnant they would switch me to another chemo… however, there are no more chemo options available to me that have been proven safe during pregnancy. So the good news is…. I am done with chemo for now. Yeah :/ (said in an extremely sarcastic, monotone, unexcited voice).

The not so good news… Next line of defense is surgery. AND… I am already booked for July 10!!! Just 12 short, wonderful days from now. I hope you’re sensing my sarcastic tone here.  I wish I was more enthusiastic about this but I am not! Having surgery while pregnant brings on a whole new set of anxieties. It is totally safe for the baby (at least that’s what they tell me, but I’m tired of them telling me stuff). However my small mind just can’t comprehend it and I just plain-old don’t like it. It seems so risky. I had surgery with Cora and yes, she is more than fine… but I was terrified the entire time going through that. I hate even thinking back about it now. My plan this time around was to have surgery after, AFTER, the baby was born. Not before and certainly not 12 days from now. I’m not happy! I do not like this change in plans. Wooosah…. I’m rubbing my earlobes trying to calm down. Not really,  but your getting it right???

Being comfortable after surgery is also a concern… little oxycodone for momma and Baby K for pain management… Oh yeah,  no problem! Ugh! Although again all of the doctors assure me it’s completely safe (there they go telling me stuff again… tired of hearing this). What mother feels comfortable taking narcotics when pregnant? It goes against everything I know and feel to be right. So, I will chose to suffer in pain and tough it out with Tylenol. Flipping great!

Again, I now have 12 days to completely get my motherly nesting act together… after surgery I can’t do squat for 4 weeks. And right after the 4 weeks is up, it’s baby go-time. After surgery my right arm will be totally out of commission. How the heck am I going to get a nursery together, all the baby laundry done, folded and put away, sterilize all the bottles and everything else I have to deep clean and do to get ready for a baby??? AAAAAHHHH!! I know people will help- but I’m sorry you guys, that’s MY JOB! I am the mom, I want to do it. I want to do it all!!! It’s all part of it, it’s all part of the big baby picture, it’s my job. I want to gawk over the little outfits and imagine how cute he is going to look in them as I fold and put them away. I want to imagine me holding him with a bottle, smelling and kissing his little head while I make room in the cabinets for the new bottles I just got. I want to clear a space next to me in our bedroom where he will sleep safely next to me. This is MY passage to motherhood… MINE! I should have 9 more weeks to get this done. Cancer brought that down to 5 more weeks for an early delivery, and now with this new change in plans I am down to 12 flipping days! FU cancer! I am screaming it as loud and clear as I possibly can right now…. F U cancer… F-off!!!!!!!

Ok, Im going to reel it back in here….

As soon as my 4 week restrictions are removed it’s baby go-time! It will be time for a special early delivery and we can meet our little man. The big prize in all of this. The climax to this story. When we all smile and nothing else matters except the sweet little boy that has joined us. Lets bask in this moment 🙂

And now…  back on the crazy train…

Then who knows what the heck will happen after the baby. More chemo? More surgery? Radiation??! I don’t know!!! Cue the cancer shit flinging monkey…

I’m doing my best to stay positive here. It’s discouraging to have come this far and not made much ground. Especially when dealing with cancer. I feel like I am a ticking time bomb and we are racing against the clock trying to beat it before it goes off and spreads in my body. That this is some game of chance and we roll the dice and see what we get. Cancer is just like this… a game of chance. I can do everything right and still lose to cancer just as much as if I do everything wrong and never have cancer ever again. It really doesn’t matter.

What does matter is I could drive myself crazy and drown or I could rely on my hope and float. I can get lost on the what-if’s or I can find my source of certainty. This is no easy feat right now… a part of me feels like I am slowly dying, I’m losing this battle right now. But the other part of me feels strong as hell and this is just another blip in the road only to make us stronger. Everything will be fine…. I am pregnant, hormonal and overreacting.

There was a sermon in church I heard a few years ago… the pastor was talking about how life is like a football game and how we are all players in the game, on the field. We can only see the game from a on-field perspective and can only see each play as it’s carried out. We can only see the players and challenges as they exist immediately surrounding us. However, God doesn’t see it that way from above. He is looking down and is able to see the entire game from His seat; in the offensive/defensive coordinator box so-to-speak. Start to finish, He knows all the plays and what’s going to happen in the entire game. He is holding the play book and has a plan for every situation. At this point, today, I just have to trust God that He is looking down on my game and He knows every play, every move and every decision made and believe that the game plays out exactly as He intends it to. That my game is up to God and not up to chance; that He is in control.

In the meantime, I will be a pregnant lunatic on one hell of a cleaning and nesting binge for the next 12 days. I know it will be ok, I really do. I am sure I will be back to my happy self tomorrow, but for now these changes in plans really suck.

10 thoughts on “Change in plans…

  1. Jodi, as I read your blog, I was brought to tears for you. There are things in this world that just aren’t fair and that we don’t understand the why of. Your situation certainly is both. I am just so glad that your able to express your feelings good and bad. I hear your trust in the Lord’s plan and pray you are able to continue to trust Him.
    I pray for the Doctors who are treating you that they will make wise decisions regarding you and your baby boy.
    Praying for you,
    Blessings,
    Cyndi

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  2. Such an honest, eloquent and powerful piece. You have such an amazing perspective. I will put you and your family in my prayers for all good outcomes. xox Becki (an OLD friend of Jak’s)

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  3. My heart breaks for what you all are going through. I see your Faith, Grace and Courage. I will add my prayers to the multitude of others – knowing that God will continue to Protect you and keep you all safe

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  4. Tears are streaming down my face…..my heart is breaking for you. Your faith in God and the strength you possess as well as the love that surrounds you will help you through this.
    I love you Jodi❤️

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  5. Jodi,
    I wish I has something meaningful to say……truth is this absolutely sucks. What I do know is that you will be ok and so will baby K. You are a strong woman! I pray for you every night!
    Make the best of the next 12 days, enjoy nesting😁
    Know many people are on your side and you will all be ok.
    Hugs,
    Sandy

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  6. You know we love you 😘 you are an amaizingbwriter btw if this nursing thing doesn’t work out.. haha
    Seriously though this sucks no way to sugar coat it but as you said in your blog only God knows the whole game so try to float on your hope. Call or text whenever!! Can we have cora again? Nora adored her playdate!

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  7. Coming at you 6-1/2 years after my recurrence, where I sit watching my kids drive each other crazy. I know every gray hair I get from them is such a gift! I never, ever take it for granted, yet belive it or not I don’t think about it all that much now. It probably doesn’t seem like it but I feel it will be this way for you too. But reading this, I am feeling your frustration and fears….. that feeling of being robbed of what we are supposed to be doing as moms. I remember being told I couldn’t change Abby’s diapers during treatment and WANTING to do it. I ended up wearing a mask and latex gloves because dammit I was her mom. 😷 And not being able to hold my babies when they wanted me during surgery recoveries…. so hard. I know it’s not the same as pregnancy at all. A whole different crazy can of worms you face and we appreciate you letting us know what it is like so we can understand and pray and rally around you. I know you are in good hands at Dana-Farber. This is a short period of time—shitty, worriesome, uncomfortable time—in the grand scheme of things. I know it doesn’t help the disappointment and worry in the little day to day moments now, but it’s all going to help you be there to experience sooooo many more moments in the future. Every day you are closer to having your family complete and cancer in the rear view mirror. You will be able to rejoice in each gray hair along with me. 👵 Sending love and praying for your peace of mind throughout all the detours. 🙏🏻❤️

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  8. Jodi – YOU ARE one of the strongest women I have ever met. You will get through this and that sweet little baby will be even more of a precious blessing. Please let us all help you. Praying for you everyday.

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